First, I caught a cold. It seemed mild at first, but, it kicked my butt. Last week I had a low-grade fever on chemo day and was coughing enough to need a mask (not for my protection, but for others). Those who know my problem with tight spaces know this freaks me out. Obviously ill, I was, however, well enough for chemo. That was the nail in the cold coffin. I degenerated from there. Ultimately, I missed work on Friday, and couldn't get off the couch all weekend. I will say, antibiotics are my friend. I am not totally done with the cold, but feel 1000% better. It was also emotionally exhausting. I think I ran out of pluck. I despaired the process for the first time. I think I am on the downside (upside?) now. Feeling both emotionally and physically better.
The next side effect that I am finding frustrating is my ongoing "digestive" issues (diarrhea - stop now if this grosses you out ). I now have such empathy for people who suffer from ITS. I can never be far from a bathroom. It has disrupted classes. It lengthened a car trip. I can't eat so many things. It is disgusting and exhausting. Burning diarrhea is a thing! I can't wait to get through this.
A freaky problem that has cropped up recently (read this last week) is the feeling of pins and needles in my hands. I thought at first it was some sort of rash beginning, but there are no visible symptoms. No redness, no sores, nothing. It's like phantom pain. Lotion doesn't help, nor does Tylenol. Ice packs helped a bit. It did subside, thankfully. I will need to learn to ignore it.
My final gripe is the rotten way food FEELS when I eat. It either is like eating cardboard, or, worse, coats my mouth in the way that too much grease does. It simply feels unappealing on the lips and tongue. It almost doesn't matter what I eat. So food is just something I force myself to eat. It is defeating.
To top this all, my daughter, who is a senior, just played her last soccer game. Mark, who has coached Girl's Varsity Soccer since it started in Lake City (13+ years), also coached his last game. It is becoming real that Lia will be gone next year at this time. It truly has been a week of meloncholy.
Luckily, today, things are looking up! My numbers are good again. The cold is nearly gone. The steriod has me buzzing, so, I am getting things done! I will include a song that will be my theme song for this journey. Howard Jones is long forgotten by most, but, I LOVED him back in the day. Had all his albums, had his poster, practically cried when I saw him in concert! What can I say, I love geeks (wink wink Mark). Enjoy the lovely 80's vibe:
Lyrics are important:
We're not scared to lose it all security throw through the wall
Future dreams we have to realize
A thousand skeptic hands won't keep us from the things we plan
Unless we're clinging to the things we prize
Future dreams we have to realize
A thousand skeptic hands won't keep us from the things we plan
Unless we're clinging to the things we prize
And do you feel scared, I do
But I won't stop and falter
And if we threw it all away
Things can only get better
Wow wow wow oh, wow wow wow oh oh oh oh
But I won't stop and falter
And if we threw it all away
Things can only get better
Wow wow wow oh, wow wow wow oh oh oh oh
Treating today as though it was the last, the final show
Get to sixty and feel no regret
It may take a little time a lonely path, an uphill climb
Success or failure will not alter it
Get to sixty and feel no regret
It may take a little time a lonely path, an uphill climb
Success or failure will not alter it
Hey, I was wondering how you were. Evy had the pins and needles thing due to a rare migraine, hemiplegic migraine. I say this only because ice helped at first but then a dose of steroids was the solution. Do you get migraines?
ReplyDeleteFunny you should say that. I don't get traditional migraines, I DO get eye migraines. I simplyou get the visual distortion that normally heralds the headache, but no actual headache. I have gotten them twice during chemo. Luckily, Tylenol relieves them. I found today the tingling could be permanent. They prescribed vitamin B6. We will see if it works. So,sorry for Evy.
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